Announcement of the TREAT-NMD training course “Standards of care in the management of people with DMD”

Posted: February 1, 2011 by mihaiela in Uncategorized

Bucharest, ROMANIA – March 18, 2011

Location: Pediatric Neurology Clinic, Alexandru Obregia Clinical Hospital, Bucharest, Romania

TREAT-NMD is organizing its fifth on-site training course, which will be held in Bucharest, Romania on March 18, 2011. We would like to invite you to join for this training opportunity.

TREAT-NMD is working with leading specialists worldwide to create international consensus on care and management for patients suffering from neuromuscular diseases. TREAT-NMD has a team dedicated to working on this issue and the TREAT-NMD website hosts user-friendly versions of a range of documents relating to patient care. For further information please visit http://www.treat-nmd.eu.

The goal of the present course is to raise awareness about Duchenne Muscular Dystrophy among Central-Eastern-European healthcare professionals and the research community, and distribute new information on the latest developments in therapy and standards of care of this disorder. The training lectures will be given by leading professionals of this field, who are members of the TREAT-NMD consortium or work as specialists on patient’s care and clinical trials. The course will also offer the opportunity to share the local experience from Romania and neigbouring countries with TREAT-NMD colleagues.

The course is organised by Professors Thomas Sejersen (Karolinska University Hospital, Stockholm, Sweden) and Dana Craiu (Alexandru Obregia Hospital, “Carol Davila” University of Medicine, Bucharest, Romania) with the support of the European Neuromuscular Centre (ENMC), Parent Project Romania and Romanian Foundation for Neurology and Epileptology, RONEP.

Topics addressed:

  • Standards of Care in DMD
  • Respiratory management
  • Cardiac management
  • Steroid treatment
  • The added value of working in multidisciplinary teams
  • Physiotherapy and orthoses
  • Current and future therapies/treatments
  • View and needs of patients/parents/families

 

The final scientific programme of the course will be available by the middle of February at: http://www.treat-nmd.eu/events/232/ .

The number of participants is limited to 40-50. Candidates should fill in the Registration Form for the course and send it together with a brief CV in English to Mrs. Katelijne Senden at senden@enmc.org by February 27, 2011. The registration form can be found at www.treat-nmd.eu/events/232/. Requests received without CV will not be taken into consideration. Participants admitted to the course will be notified by March 4th, 2011.

Location: The TREAT-NMD training course will be hosted at the Pediatric Neurology Clinic, Al Obregia Hospital, Bucharest, Romania.

 

Costs: The course is free of charge. The coffee breaks and the lunch buffet on March 18, 2011 will be free. Participants will have to provide for their travel and accommodation expenses.

 

Accomodation: A number of rooms are available at the Al Obregia Hospital. These rooms are offered for free by the hospital. If you are interested in one of these rooms, please contact Katelijne Senden at senden@enmc.org. If you prefer to stay at the nearby Rin Grand Hotel, please use the following link to make your room reservations. http://www.booking.com/hotel/ro/rin-grand.en-gb.html?aid=330632;label=hotel-39986-ro-HVPwRmsxUSsU*iTcEBYEDge;sid=082bc4244d761bad026c387585a0c12b;checkin=2011-03-17;checkout=2011-03-18

 

For further information please contact Katelijne Senden at senden@enmc.org.

EMC: course is credited by Romanian Medical College and recognised by “Carol Davila” University of Medicine.

We look forward to welcoming you in Bucharest.

Best regards,

Professor Dana Craiu

Professor Thomas Sejersen

 

Please feel free to send  the information above to all of your colleagues of whom you feel, they would be interested in participating.

 

Thank you very much in advance and please do not hesitate to contact me in case there are any questions.

 

With kind regards, Katelijne

 

Katelijne Senden, M.Sc.

Project Coordinator TREAT-NMD

 

European Neuromuscular Centre
Lt. Gen. van Heutszlaan 6
3743 JN Baarn
tel. (31) 35 5480478
fax (31) 35 5480499
email address: senden@enmc.org
http://www.enmc.org
www.treat-nmd.org

 

In the office: Monday, Wednesday and Thursday.

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