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Ceremony Honoring Prof. Dr. Segolene Ayme – France as a Visiting Professor of the Medical University Iuliu Hatieganu
Posted: August 11, 2009 by mihaiela in conferinteTags: ANBRaRo, APWR, balcanic, balkan, boli rare, cluj-napoca, conferinte, congres, Medical University Iuliu Hatieganu, Prof. Dr. Segolene Ayme, rare disease, Visiting Professor
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We can only say that all the audience was impressed about the the activity performed by Ségolène Aymé.
The entire ceremony revealed a VERY RARE PERSON that dedicated her work for people with rare diseases.
Ségolène Aymé is a medical geneticist and an epidemiologist, director of Research at the INSERM (National Institute of Health and Medical Research), currently director of the INSERM service entitled “Gene Mapping and Clinical Research” in Paris. This service established in 1997 the European database of rare diseases and orphan drugs called Orphanet http://www.orpha.net, currently funded by the French Ministry of health, the INSERM and the European commission (DG Public Health). Her research activity has been dedicated to the epidemiology of birth defects and to the assessment of the impact of new technologies in genetics on Public Health. From 1984-1996, she was head of the Birth Defects Registry of the Marseilles area, then project leader of EUROCAT (European Network of Birth Defects Registries) from 1996 to 1999. She has been the first president of the International Federation of Human Genetics Societies from 1997 to 1999 and is the current chairperson of the Public and Professional Policy Committee of the European Society of Human Genetics which is releasing recommendations and guidelines. She is expert to the European Commission and member of the INSERM ethics committee.