Review Multidisciplinary approach in the management of PWS, Timisoara, April 2009

Posted: April 27, 2009 by mihaiela in conferinte, Evenimente APWR, simbotour
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Images 1st East European Conference on PWS, Timisoara April 2009

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Comments
  1. Doina Popa says:

    Am participat la eveniment cu o reala curiozitate. Raspunsul a fost pe masura: totul bine gandit, pregatit cu responsabilitate, cu generozitate, de inalta tinuta profesionala. Multumiri si felicitari organizatorilor si tuturor celor care au conferentiat.

  2. Iulia Jurca- Simina says:

    The conference was a suscces indeed! It created a bridge between patients and doctors and psychologists. Me, like a medical student , I had many things to learn from all the presentations made with so much experience and, of course, from the workshops that were so good organized. So, I am greatfull for all to Dr. Maria Puiu and Ms. Dorica Dan!

  3. Emilia Severin says:

    It was a great event indeed! The conference was useful for both professionals and patients. It combined scientific information with human feelings, care and practice. It was well and friendly organized.

  4. Tamara Marcovici says:

    Un eveniment de inalta tinuta stiintifica, foarte bine organizat. Felicitari!

  5. Tamara Marcovici says:

    Un eveniment de inalta tinuta stiintifica, foarte bine organizat. Felicitari!

    Tamara Marcovici

  6. Margit says:

    It was a real platform for patients and professsionals. It is nice to see how the people are involved and the relation in the association that they created in time. Great!

  7. elutaf says:

    Prezentari conferinta

    Norwegian Romanian (No Ro) Parternership For Progress In Rare Diseases

    About Frambu – Dr. Kaja Giltvedt

    PWS patients’ expectations at European level regarding the diagnosis and healthcare services- Christel Nourissier, Secretary of General EURORDIS

    Project: Correlation of clinical, genetics and epigenetics aspects for understanding the etiology Prader Willi/Angelman syndromes – a model of interdisciplinary approach of rare diseases in Romania- coordinator Prof. Dr. Maria Puiu

    Children Health Pws,Susanne Blichfeldt MD Denmark

    Pws General Health,Susanne Blichfeldt MD Denmark

    Hubert Soyer, Norbert Hödebeck-Stuntebeck, Germany

    Orthopedic and Surgical Approach in Prader Willi Syndrome Patients Popoiu MC, David VL, Sima L, Boia ES, Badeti R, Puiu M

    Sindromul de apnee în somn în Prader Willi dr. Ştefan Mihăicuţă

    Elements of diagnosis and clinical follow-up in PWS – Assoc. Prof. Dr. Otilia Marginean

    he living environment and workplace for patients with Prader-Willi-Syndrome Dr. Hubert Soyer, Germany & Christel Nourissier, France.

    Behavior management by people with PWS Norbert Hödebeck-Stuntebeck.

    Pws Eu Database Timisoara Apr09.

    Endocrine approach in PWS patient Assoc. Prof. Corin Badiu & Maria Picu, Madalina Vintila, Simona Verzea

    Genotype Phenotype Correlation In Prader Willi Syndrome, Cristina Skrypnyk- MD

    Epigenetic factors in imprinting diseases Natalia Cucu, PhD, Assisstant Prof, University of Bucharest Gabriela Anton, PhD, Senior Res, Institute of Virology”Stefan Nicolau” Bucharest Maria Puiu, PhD, Professor , UMF Timisoara

    THE FLUORESCENCE IN SITU HYBRIDIZATION (FISH) ANALYSIS IN PRADER-WILLI SYNDROME Authors: Monica Stoian, Maria Puiu, Valerica Belengeanu

    MANAGEMENTUL SAS IN PRADER – WILLI Stefan Mihaicuta UMF V. Babes Clinica de Pneumologie

    COMMUNICATION, COGNITIVE DEVELOPMENT AND BEHAVIOR IN CHILDREN WITH PWS Violeta Stan

    NEW TECHNIQUES OF DIAGNOSIS IN PRADER – WILLI SYNDROME, DR. CRISTINA RUSU

    Volunteering activity of students at Faculty of Medicine for rare disease promotion

    Implication of NGO’s in education of patients with rare disease and general population – Dr. Mihai Gafencu

    Health care services for patients with PWS Dorica Dan – president APWR/ ANBRaRo Prof. Dr. Maria Puiu, UMFT

    Training For Teachers, psiholog Mihaiela Virginia Fazacas

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